04/24/2024

Wales News Online

Local & National News for Wales

A new book documenting the story of Ellie’s journey will be released soon. Ellie decided to raise money and awareness for cystic fibrosis and the impact this has had in the local community.

Ellie knew her Dad had a condition called cystic fibrosis and once she realised there wasn’t enough beds at Llandough Hospital, she decided to take matters in her own hands. She decided to climb Pen-y-fan every month for six months and in July. Snowdon was also climbed.

In August Ellie and her supporters will climb Pen y Fan again, reversing from the peak and climbing back up the Fan known as Jacob’s ladder; the fan dance which is the 24k route march utilised by the SAS Selection team.

This is a true story to raise awareness around this disease and Ellie’s journey from the beginning. This is also Dad’s story, and how the family have dealt with this condition through Ellie’s eleven-year-old life.

This six-month challenge has gathered momentum from a local child wanting to raise funds, to media and public figures getting involved and encouraging Ellie for her spirit and the need to fund more beds at Llandough Hospital.

Ellie is also inspired to achieve this challenge as a Thank You to the Cystic Fibrosis unit, on behalf of her Dad and family.

The family, close friends, her key teachers and everyone who has contributed to this book has been immeasurable. All fundraising to date has resulted in the original target of £1000, to be smashed. Currently the funds are reaching £6,500 with all proceeds of this book going directly to the Better Life appeal in Llandough Hospital. We are confident that we will raise enough funds for those beds, which are desperately needed.

For more information, please contact the Better Life Appeal for fund information. Contact Bolton Williams for information regarding book release date and any media requirements regarding Ellie and Ellie’s Journey.

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