A Carmarthen Mum will be running the London Marathon to help raise awareness of a condition, which almost killed her daughter.
“I want all pregnant women to be told about group B Strep so they can at least make a decision to have the test or not. What I would give to have had that knowledge while I was pregnant,” said Yvonne Davies
Yvonne Davies, from Carmarthen, is running the London Marathon, which has been postponed until later in the year to raise awareness of group B Strep, the most common cause of severe infection in newborn babies, causing sepsis, pneumonia, and meningitis. Yvonne’s daughter, Ffion, almost died a few days after birth in 2010 from a group B Strep infection. This is Yvonne’s second marathon.
Group B Strep kills one baby a week in the UK and another is left with a life-changing disability. It is a common bacterium, which lives quite normally in our bodies and is usually harmless. When pregnant women carry group B Strep – and approximately one in four do – it can be passed to their baby around labour and, for some of those babies, cause potentially life-threatening infection. The NHS does not test pregnant women for group B Strep unlike the United States, Germany, France, Spain, and many other developed countries, where all mothers-to-be are tested.
I’ve had first-hand experience of this having nearly lost Ffion to group B Strep infection,” said Yvonne Davies. “What she went through in her first weeks of life was horrendous and now having cerebral palsy and epilepsy as a result of the infection is heart breaking, particularly when this could have been avoided.”
Most group B Strep infections in newborn babies can be prevented by testing the mother late in pregnancy and providing antibiotics in labour to those who test positive. This reduces the risk of a newborn baby developing the infection by up to 90 per cent. The test would cost the NHS just £11 and from £35 privately. For more information go to www.gbss.org.uk.
Yvonne Davies said: “I want all pregnant women to be told about group B Strep and the effect it can have on their baby. What I would give to have had that knowledge while I was pregnant. Giving them the tools to make an informed decision is critical so they can at least make a decision about whether to have the test or not. It’s such a shame that the UK still does not do this test for all pregnant women.
“I’m running to raise awareness of group B Strep as well as fundraising to help the charity, Group B Strep Support (GBSS). The charity is small and £2,000 will make an enormous difference. With a small charity you can see where the money is being spent. Ffion is the light of my life. Her determination, strong will and happiness is amazing and I run this for her. She runs her 1km races with such determination, I have no excuse not to get round 26.2 miles.
“I ran the London Marathon in 2016 and have run lots of half marathons but I’m definitely not a natural runner. However, if I can do it, anyone can and I’d love to inspire others to start running. I’m a Run Leader in my local running club, the Trots, and run with the Beginner to 5K group. Anyone can enjoy the benefits of running,” said Yvonne Davies
Visit https://www.justgiving.com/fundraising/groupb2020 to support Yvonne Davies’ fundraising.
Jane Plumb MBE, founder and chief executive of the Group B Strep Support charity, said: “We’re so grateful to Yvonne for running the London Marathon to raise funds for Group B Strep Support. It’s a major achievement and will raise invaluable funds for our work in informing and educating expectant parents and their families about group B Strep and how to reduce the risk to newborns.
“Sadly, in the UK we continue to see the rates of group B Strep in babies rising. We are calling on the NHS to offer all pregnant women testing for group B Strep so that other families do not suffer as the Davies’ have done,” Jane Plumb continued.
Group B Strep Support is asking its supporters in April to take on the distance of a Marathon in a month, by running, walking, swimming or cycling the 26.2 miles distance – while raising awareness of group B Strep infection in newborn babies. Iwan Thomas explains in this clip how to get involved.
********
For further information on group B Strep or Group B Strep Support, please contact Frances Knox, Frankly PR, frances@frankly-pr.co.uk or 07850 470123.
UK prevention approach
The UK does not routinely offer antenatal testing for group B Strep, unlike most high-income countries, including the United States, Canada, Germany, France and Spain.
In the UK, health professionals consider a range of risk factors to determine whether a woman should be offered antibiotics in labour, rather than testing for the presence of group B Strep.
Latest guidelines from the Royal College of Obstetricians & Gynaecologists (RCOG) are at https://obgyn.onlinelibrary.wiley.com/doi/full/10.1111/1471-0528.14821.
The UK rate of early-onset group B Strep infection (those developing in babies in their first 6 days of life) is increasing and is currently two and half times (2.5x) that of the United States. The US rate dropped by over 80% following the introduction of routine testing.
In 2019, the Department of Health & Social Care announced funding for a major clinical trial comparing the effectiveness of testing compared against risk-based screening in 80 hospitals in England, Wales and Scotland.
Testing for group B Strep carriage
The most effective test for group B Strep is an enriched culture medium test (ECM test) and is available from a number of home testing services and private clinics (see www.gbss.org.uk/test).
The ECM test is a safe test, usually done between 35-37 weeks of pregnancy, and the swabs can be taken by the pregnant women herself.
Although at present the NHS does not routinely test all pregnant women for group B Strep carriage, the RCOG recommends that women who tested positive in their previous pregnancy should be offered testing specifically for group B Strep, using the ECM test, in their next pregnancy. As a result, the ECM test is increasingly becoming available in NHS hospitals.
The ECM test is highly sensitive – it will detect almost twice as many women carrying group B Strep than the all-purpose swab test used in the NHS to investigate vaginal discharge.
Group B Strep Support
Group B Strep Support is a national charity, working to stop group B Strep infection in babies.
Set up in 1996 by Jane Plumb after her son, Theo, died from group B Strep infection aged 17 hours. The charity is dedicated to stopping group B Strep infections, including meningitis, in babies. We support families affected by group B Strep, educate the public, doctors and midwives about group B Strep and campaign for improvements to prevention and treatment in the UK.
www.gbss.org.uk: offers information about group B Strep infections, testing and treatment. All information is approved by an expert medical advisory panel.
Helpline: 0330 120 0796 or email info@gbss.org.uk provides one to one support and information.
More Stories
Conservatives’ Lack of Action on Obscene Energy Profits “Indefensible” says Welsh Lib Dems
New Audit Office Report on Poverty in Wales supports Plaid Cymru’s calls
Successful Operation targeting anti-social driving across Newport and Monmouthshire